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About PainCareRights.org

Built from the work our family had to learn the hard way.

PainCareRights.org grew out of Jeremy and Olive Roberson's experience trying to keep one family member medically stable while records, referrals, medication access, communication, and formal routes kept becoming separate problems.

The site combines lived experience, Jeremy's background in Fire and EMS, a degree in microbiology, years in IT, Olive's medical source and legal route research, and the lessons they learned from patients and caregivers across the country. It is not a substitute for medical or legal advice. It is meant to help people understand the problem in front of them, organize the facts, and prepare a clearer next step.

Since January 2023family advocacy shaped by daily experience
50 statesreviewed baseline coverage for records, insurance appeals, and complaint processes
Why this page matters

PainCareRights.org is not built around a distant brand story. The people behind it had to learn how to document function loss, correct records, research public sources, prepare for appointments, and push for answers while living through the consequences of delayed or fragmented care.

The people behind the work

Two perspectives shaped the same mission.

Jeremy came to the problem as a patient with medical and emergency response education. Olive came to it as a spouse, caregiver, researcher, and advocate who had to learn the system while protecting a growing family.

Jeremy Roberson, founder of PainCareRights.org
Founder

Jeremy Roberson

Fire and EMS · Microbiology · IT · Patient advocacy

Jeremy brings Fire and EMS experience, a degree in microbiology, and years in IT. After his January 2023 workplace accident, he used that background to document symptoms, records, care barriers, and the decisions affecting his treatment.

Read Jeremy's full backgroundExperience, education and role

Jeremy grew up around pharmacy practice through his father, who worked as a pharmacist for 46 years. That background did not make chronic pain care simple, but it gave him additional context for reading medical information, asking detailed questions, and noticing when the written record did not match daily function.

His IT work added a systems mindset that became useful after the accident: preserve the evidence, track dates, identify who owns the next action, and never assume separate offices or systems are communicating with each other.

Fire and EMSEmergency response experience
MicrobiologyDegree and science education
ITSystems and documentation work
AdvocacyPatient experience and site development
Olive Roberson, co founder of PainCareRights.org
Co founder

Olive Roberson

Research and Patient Advocacy

Olive legally immigrated from the Philippines to the United States. While pregnant with their son, she became Jeremy's primary caregiver, stepped away from work, and researched NIH and CDC sources, records, complaint processes, and formal routes when answers stalled.

Read Olive's full backgroundCaregiving, research and advocacy

Their son was born four months after Jeremy's accident. Olive kept track of appointments and records, prepared for visits, researched medical source material, and helped identify formal medical and legal routes when care stalled.

After legally immigrating from the Philippines, Olive expected greater medical freedom and clearer patient protections in the United States. Supporting Jeremy showed her how quickly dismissal, medication barriers, and fragmented communication can leave a family searching for answers on its own.

CaregivingFamily care and appointment advocacy
NIH and CDCMedical source research
Formal routesRecords, complaints, and legal route research
Legal immigrationPhilippines to the United States
How the mission grew

The website came after years of trying to solve the same problems by hand.

The first goal was not to build a public organization. It was to get through the next appointment, understand the next record, find the right source, and keep the family moving forward. The larger mission developed because the same kinds of problems kept appearing in other people's stories.

  1. 01

    January 16, 2023

    Jeremy was injured at work after moving into IT. What followed changed daily life for the whole family and forced them to learn how records, referrals, medication access, insurance, and formal complaint routes actually work when care breaks down.

  2. 02

    Caregiving became advocacy

    Olive was pregnant with their son, who would be born four months later. She stepped away from work to help manage Jeremy's care, prepare for appointments, research NIH and CDC information, and keep pushing when answers were incomplete or delayed.

  3. 03

    Research became a family system

    They learned to compare records, save dates, trace decisions, research official rules, and separate medical questions from administrative and legal routes. That work became the practical foundation behind PainCareRights.org.

  4. 04

    Other patients kept finding the same problems

    Private groups, direct messages, and new friendships introduced them to patients and caregivers facing similar dismissal, medication barriers, record problems, and delays. Their private advocacy became public because the pattern was much larger than one family.

  5. 05

    PainCareRights.org was built to make the next step clearer

    The site now focuses on practical preparation, reviewed public sources, record accuracy, appointment planning, medication access barriers, complaint routing, and tools that keep the patient in control of what is saved or sent.

What that means for the site

Practical help should be careful, sourced, and usable when someone is already overwhelmed.

Jeremy's medical education and emergency response background help with understanding health information. Olive's research and caregiver experience help keep the work grounded in what families actually need to find and document. Their combined IT experience helps bring structure to records, workflows, privacy, and the tools themselves.

Review our sourcesRead editorial standards
  • 01

    Give people useful help before asking them to pay for anything.

  • 02

    Keep medical education separate from diagnosis and treatment decisions.

  • 03

    Use reviewed public sources for state, agency, records, insurance, and complaint guidance.

  • 04

    Keep the patient or caregiver in control of every draft, document, and next step.

From private advocacy to public work

We realized we were not the only family fighting to be heard.

Conversations in private groups and online friendships brought more stories of dismissal, delayed care, medication access problems, inaccurate records, and families trying to coordinate systems that were not coordinating themselves. That is what pushed the Robersons to make their advocacy public, share more of their own story, and build PainCareRights.org as a resource other people could use privately.

Follow the public advocacyRead the petition
Start with your own next step

You do not need to tell your whole story before you can start organizing it.

Use the tools to prepare for an appointment, document a record problem, organize a medication access barrier, or identify the official route that fits the issue you are dealing with now.

Use the advocacy toolsPrepare your story privately