Drafts stay in the browser
Current drafting tools are designed as browser aids. Visitors copy their own draft instead of submitting it to the site.
Privacy policy
Privacy comes before patient data collection.
The current public site is intentionally designed to avoid collecting sensitive patient information through public forms, accounts, story submissions, forums, or data-collecting tools.
Privacy guide
Why the site collects less by default.
The current drafting tools are meant to help visitors write and copy their own language without creating accounts, submitting stories, or storing private health details on the site.
Best first route
Use private drafting tools
The tools are designed to help you draft and copy text without submitting it to the site.
Current privacy posture
The site is primarily public education plus private browser-based drafting tools. Do not send private medical details through the website unless a secure form clearly explains consent, storage, review, and deletion rules.
If a feature collects data
If story submissions, contact forms, email-list forms, forum accounts, or data-collecting advocacy tools collect information, the site must define what is collected, why it is collected, how long it is kept, who can access it, and how users can request deletion.
Sensitive information warning
Avoid sending full medical records, Social Security numbers, account numbers, private insurance identifiers, prescription numbers, home addresses, or names of clinicians/pharmacies unless a secure process specifically requests and protects that information.
Third-party services
Analytics, ads, payment providers, email tools, guided drafting services, storage services, or forum services should be named in the privacy policy when they receive or process visitor information.
Privacy-first path
Useful patient tools should not force people to expose more than needed.
This site should stay helpful for people who are sick, rushed, elderly, or afraid of being judged. The privacy standard is simple: collect less, explain more, and keep current drafting tools under the user’s control.
Prepare before sharing
Use the tools to organize facts on your own device, then remove sensitive details that are not needed for the recipient.
Open tools →Keep first messages narrow
Source leads, collaboration ideas, or support questions should not include full records, account numbers, prescription numbers, addresses, or urgent medical requests.
Use contact router →Paid tools need extra controls
Saved packets, accounts, email delivery, and guided help belong behind clear retention, deletion, review, and consent rules.
Review safeguards →Details that should stay out by default
More detail is not always safer. Many first drafts and first contacts work better when unnecessary identifiers are removed.
- Avoid full medical records, full addresses, birth dates, prescription numbers, account numbers, and claim numbers unless a secure process specifically needs them.
- Do not post another person’s private medical details, clinician accusations, or identifying information in a public space.
- Keep payment and supporter account data separate from health-related drafts.
- Review any downloaded or copied packet before sending it through an outside channel.